Are there any services out there that specifically provide mental health support for children/ young adults with Duchenne?
The parent has tried to access support through their health services but hasn't been able to get any.
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May 17, 2021 2:36 pm
4 Replies
May 17, 2021 5:29 pm
We are lucky enough to have a Neuromuscular Adviser in Devon and Cornwall, I would usually be asking them for advice.
May 18, 2021 2:51 pm
Where are you based? I would be very sad if the peron's diagnosis has anything to do with them gaining access to support. Are they verbal? I would assume so.
May 25, 2021 3:29 pm
May 25, 2021 3:29 pm
Hi, this might be helpful
Someone to talk to is a peer to peer support where a volunteer is assigned to you to talk about what it’s like to have a deteriorating condition https://www.musculardystrophyuk.org/news/news/peer-support-someone-to-talk-to/