Can anyone advise about providing support to parents of a child (of mainstream ability but attending a PD school setting) who is beginning to ask questions about his disability - specifically why he cannot walk and will he ever be able to walk. This child is 6 years old and has begun to use a power chair. He has mytonic muscular dystrophy which may or may not be degenerative.
His mum has asked me what she should tell him. I have lots of SEN experience but not with children with his level of understanding to ask these questions and to be able to contemplate his own future.
Can anyone give advice or point me in the direction of any resources that the parents might be able to access or that we could use in school.
Thank you
