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Genetic Alliance UK

Genetic Alliance UK
 
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Genetic Alliance UK

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(@maxterryoutlook-com)
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Joined: 8 years ago
[#626]

Colleagues may find this information useful/interesting:  https://www.geneticalliance.org.uk/   A representative of this organisation attended the recent session hosted by MDUK on psychological support for those with neuromuscular conditions.

Notice they include information on rare conditions. At the time of writing they are finalising resources for a Rare Diseases Day so please check their website for this.

Max