Is there an OT involved?  Or have they been redeployed?  My initial thought would be to ask them...

Hi Jo,

That was my first thought as well! Unfortunately there is no OT involved and the school have been told that the pupil wouldn't qualify for involvement.

I replied to this earlier but my post appears to awaiting moderation (perhaps because I put a link in?) The gist was that I have not really come across specific resources either as a senco or as an adult with chronic pain myself (though I've done courses) and everything I've done has taken a very individualised approach. However, the marble approach sounded based on 'spoon theory' which might be useful to look up and on a personal front, is a way of thinking that I have found useful.

This is what my colleague, K-J, has suggested:
<div>I have a child who has a colour coded system - all school activities are colour coded red, amber and green. Red activities are low energy expenditure (the lowest), amber are medium expenditure and green are high energy expenditure - such as going out to play, joining in PE. The child has learnt to recognise if they are on red, amber or green and can then choose activities. Equally, the parents help to train staff to recognise the symptoms for when the child need to engage with red activities even if want to do amber or green activities. The support staff and class teacher have learnt to read the child's symptoms and can use visual prompts in class to show the child which colour they are on and therefore which activities are possible. When it comes to PE and social times (break and lunch) the adults help to monitor and regulate the activities on offer. It has been a whole team approach and peers have been taught how important it is for the child to follow the colour coded system.</div>