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Admission of child with Duchenne Muscular Dystrophy

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Admission of child with Duchenne Muscular Dystrophy

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Posts: 8
(@kj-dalleyessex-gov-uk)
Active Member
Joined: 8 years ago

Hi, as Jo said, in Essex we have a specialist teacher team who deal with this. I would speak with the OT/PT about what will actually be needed now and in the future and go to the school for an access assessment visit with the OT. The LA might be able to help as well, worth asking them? If you are needing to build new spaces, or adapt existing, get quotes and ask the LA if they can assist with funding. Keep an open mind, physio space doesn't always need to be a specialist room. I have had young people using an empty classroom with a PE style mat in the past (in a secondary school) so be flexible.


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Posts: 105
(@jo-lambertessex-gov-uk)
Estimable Member
Joined: 8 years ago

I had a quick look at Cambridgeshire Local offer but could only find adult PD services..the Children's section says coming soon


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Posts: 3
Topic starter
(@shorlocksawstonvc-org)
Active Member
Joined: 3 years ago

Yes.  The problem is Cambs do not have the same offer as other counties.  At the moment I am struggling to be appropriately signposted 🙁


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Posts: 5
(@michelle-woodskent-gov-uk)
Active Member
Joined: 3 years ago

Hi,

Do you have an Area Education Lead within Cambridgeshire?  Any works that need to completed may need to supported by the local authority, particularly with this CYP has an EHCP and the school has been named.


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Posts: 2
(@gina184hotmail-co-uk)
New Member
Joined: 3 years ago

What a pity you don't have a PD team and the LO seems to not yet be running as it should!

Firstly, is this young boy a wheelchair user and unable to weigh bear? Needing a lift for transfers?

You have mentioned you may not have adequate facilities to support his care needs; building work that may pose a high risk and stairs with no lifts! To me all of this is screams 'red alert' as this young boy's needs are regressive therefore challenges will increase and if you don't plan properly, at this stage, and take in consideration the various challenges you may indeed fail to make provision. In addition, the placement may then break down which means another change for this young boy.

What does your school's access plan states? Are there actions for a future lift, etc?

How would you be able to have every single subject lesson on the ground floor? Is accessibility around the building compromised due to the building work? This could limit his social interaction and be placed at substantial disadvantage...

DM (gina.mime@barnet.gov.uk) me if you wish to discuss further, we are all here to support each other.

Wishing you a very merry and healthy holiday season


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